Access to ART Services: Lived Experiences and Coping Strategies of HIV-Positive Persons With Visual Impairment in Lira District, Northern Uganda
Loading...
Date
2025
Journal Title
Journal ISSN
Volume Title
Publisher
John Wiley & Sons Ltd
Abstract
Background: Despite progress in the HIV/AIDS response, marginalized populations persistently face unique challenges in
accessing essential healthcare services, including antiretroviral therapy. The aim of this qualitative study is to explore and
understand the lived experiences of individuals living with HIV and visual impairment in Lira District, Northern Uganda,
specifically focusing on their access to antiretroviral therapy services. Additionally, the study is aimed at identifying and
analyzing the coping strategies employed by this population in navigating the intersectionality of HIV and visual impairment.
Methods: This qualitative study, conducted in Lira District, Northern Uganda, employed a descriptive phenomenological design.
Thirty in-depth interviews were conducted at Lira Regional Referral Hospital, focusing on individuals living with both HIV and
visual impairment. Data collection involved a semistructured interview guide, addressing key issues derived from a literature
review. Thematic analysis was used for data analysis, guided by Braun and Clarke’s framework.
Results: Participants (N = 30) exhibited diverse sociodemographic characteristics, with ages ranging from 19 to 68 years. A
number of themes emerged during data analysis: individuals developing visual impairment before and after ART initiation.
Emotional challenges, strained relationships, and perceived burdenship were common themes among participants. Limited
understanding of the cause of sight loss and a heightened perceived risk of HIV infection were evident. Challenges in accessing
ART services included transportation difficulties, negative attitudes from healthcare workers, and a lack of trust in community
drug distribution points. Participants employed various coping strategies, including prayers/religion, reliance on social support
networks, denial, acceptance, and community rehabilitation. Positive religious beliefs offered hope, while social support played
a crucial role in adaptation. Community rehabilitation and support were highlighted as instrumental in aiding coping.
Conclusion: Despite awareness about the risk of HIV infection, significant barriers persist in accessing ART services for persons
with visual impairment. Coping strategies underscore the importance of addressing psychosocial aspects. Tailored interventions,
education, and policy changes are imperative to enhance inclusivity and accessibility of healthcare services for this vulnerable
population in Uganda.
Description
Keywords
coping strategies, HIV infection, lived experience, visual impairment
Citation
Acila, G. K., Aju Ijorea, N., Kabunga, A., Angom, M. J., Talemwa, S., Ayer, P., & Auma, A. G. (2025). Access to ART Services: Lived Experiences and Coping Strategies of HIV‐Positive Persons With Visual Impairment in Lira District, Northern Uganda. BioMed Research International, 2025(1), 1903886.